Mawnan Smith resident Ann Bennett, visited Parliament last week to call for better care for people living with Idiopathic Pulmonary Fibrosis (IPF), a rare and serious lung condition.

The event, organised by Roche Products Limited, brought together those living with IPF and politicians from all parties to raise awareness of the disease. Maggie Throup MP, whose mother passed away from the illness, hosted a meeting to hear their stories and discuss what action could be taken to improve care and diagnosis.

The condition leaves people struggling to breathe with some needing to carry oxygen. Sufferers from all across the country went to London to take part. At the meeting, participants raised the issue of a gap in early stage treatment and care.

Ann Bennett, who is living with IPF, said: “I am a carer as well as an IPF patient, as my husband Peter has severe chronic obstructive pulmonary disease (COPD). I really enjoyed today’s event as I feel it’s important we have our voices heard by Parliament, I think everyone suffering with IPF should experience events like this.”

Maggie Throup MP said: “I’m delighted to be championing people with IPF. I know from firsthand experience with my mother’s illness how life-changing a diagnosis of IPF can be, and I have been inspired by those who have attended today to share their experiences.”